A N N O U N C I N G:
Understanding the Lived Experience of Eczema
The "Voice of the Patient" Report on the Eczema
Patient-Focused Drug Development Meeting
On March 18, 2020, the five host organizations jointly released the More Than Skin Deep "Voice of the Patient" report summarizing the September 23, 2019 patient-focused drug development meeting – a novel effort to understand and share the lived experience of patients and caregivers affected by atopic dermatitis, the most common form of eczema.
For the first time ever, adults and children living with eczema and their family members shared riveting descriptions of symptom burdens, challenges managing the disease, and treatment expectations with U.S. Food and Drug Administration (FDA) regulators, drug developers, and researchers. This comprehensive, full-color report shares testimony, data, and photos from the 160 in-person participants, 1,508 respondents to the companion survey, and thousands of virtual attendees participating via webcast. The More Than Skin Deep survey is one of the largest surveys of the eczema community to date. Click here to view the report.
Participants described a wide array of treatments considered and tried. They spoke to difficult benefit-risk decisions, time-consuming regimens, and harms experienced -- all in the pursuit of relief.
Five host organizations share how they'll incorporate initiative learnings in a special "Reflections" section within the report.
This comprehensive, full-color report documents the compelling testimony, data, and photos from hundreds of eczema patients and caregivers across the U.S. and around the world.
This two page overview provides a summary
of the report, including the More Than Skin Deep patient-focused drug development meeting and the survey.