About the Partner Organizations
Five organizations serving the eczema community joined together to make sure FDA staff, drug and medical device developers, and other stakeholders hear directly from people living with eczema about the many burdens of the condition and the treatment outcomes that matter most to them. Learn more about these organizations and the valuable programs, resources, and services they provide:
About the Allergy & Asthma Network
Allergy & Asthma Network is the leading nonprofit patient education and advocacy organization for people with asthma, allergies and related conditions. Our patient-centered network unites individuals, families, healthcare professionals, industry and government decision makers to improve health and quality of life for Americans with asthma and allergies. We specialize in making accurate medical information relevant and understandable to all while promoting evidence-based standards of care. Learn more at allergyasthmanetwork.org.
About the Asthma and Allergy Foundation of America
Founded in 1953, the Asthma and Allergy Foundation of America (AAFA) is the oldest and largest non-profit patient organization dedicated to improving the quality of life for people with asthma, allergies and related conditions through research, education, advocacy and support. AAFA provides practical information and community-based services through its digital communities and network of chapters and support groups. AAFA is a member of the National Health Council. Learn more at aafa.org.
About Global Parents for Eczema Research
"Global Parents for Eczema Research is a grassroots, parent-led non-profit organization that advances research and policy changes that lead to better treatments and prevention strategies for moderate to severe eczema in children. We also help patients and families with peer support and access to the latest and very best scientific information. Our mission is to improve quality of life and reduce suffering for children with moderate to severe eczema and their families and our vision is a future in which no children suffer from eczema." Learn more at parentsforeczemaresearch.org
About the International Topical Steroid Awareness Network
The International Topical Steroid Awareness Network (ITSAN) is a US-based nonprofit formed in 2012 to provide support and raise awareness about a condition called Topical Steroid Withdrawal Syndrome (TSW Syndrome), also known as Topical Steroid Addiction or Red Skin Syndrome. ITSAN has grown into a global support network and educational resource for individuals, caregivers, and healthcare providers. Its main goals are prevention, early detection, accurate diagnosis, and proper treatment for all TSW Syndrome patients worldwide. Learn more at itsan.org.
About the National Eczema Association
Founded in 1988, the National Eczema Association (NEA) works to improve the health and quality of life for individuals with eczema through research, support, and education. Specifically, NEA seeks to break through negative stereotypes to promote understanding of eczema and reduce burden of disease; equip medical practices for a new era in eczema care; promote new models of care; support high-value/high-yield research projects; and, advocate for accessible and affordable treatments for all eczema patients. Learn more at nationaleczema.org.